Résumés
Résumé
Il est de plus en plus établi qu’un diagnostic de cancer affecte profondément, non seulement la personne atteinte, mais également son conjoint ainsi que la dyade que forme le couple. La qualité du soutien au sein du couple joue également un rôle déterminant dans l’adaptation au cancer. La connaissance des besoins de soutien des couples en contexte de cancer demeure cependant limitée. Par ailleurs, il existe peu de données qui permettent d’établir dans quelle mesure ces couples perçoivent obtenir ou non une réponse à leurs besoins dans le système québécois de santé et de services sociaux. L’amélioration du soutien à leur endroit requiert de mieux cerner leurs besoins et la réponse à ceux-ci dans l’offre de service en oncologie. Cet article présente les résultats d’une étude descriptive mixte réalisée auprès de couples, de professionnels et de gestionnaires dans deux régions administratives du Québec. Cette étude vise à dresser un portrait des besoins prioritaires des couples touchés par l’expérience du cancer et de l’offre de service qui leur est destinée. Les résultats indiquent que les couples éprouvent une diversité de besoins de nature psychosociale, mais il est perçu que le système de santé et de services sociaux répond moins bien à ceux-ci qu’à ceux de nature médicale. Les résultats révèlent l’importance de parvenir à une meilleure intégration des services psychosociaux propres aux couples dans l’offre de service. Enfin, les connaissances issues de cette étude donnent des indications pour la mise en place d’une offre de service mieux arrimée à leurs besoins.
Mots-clés :
- cancer,
- couple,
- besoins,
- intervention psychosociale,
- offre de service
Abstract
There is growing evidence that a cancer diagnosis profoundly affects not only the person with the disease, but also their spouse and the dyad formed by the couple. The quality of support within the relationship also plays a determining role in the couple’s adaptation to cancer. Limited knowledge exists on the support needs of couples dealing with cancer. Furthermore, limited data is available that would make it possible to determine the extent to which these couples perceive that their needs are met (or not) by the Quebec health and social services system. In order to improve support for these couples, it is necessary to have a better understanding of their needs, as well as the responses to these needs by oncology services. This article presents the results of a mixed descriptive study conducted among couples, professionals and managers in two administrative regions of Quebec. The purpose of this study is to draw a picture of the priority needs of couples affected by cancer and the services intended for them. The results indicate that couples experience a diversity of needs of a psychosocial nature but it is perceived that the health and social services system’s response to these needs is not as good as for needs of a medical nature. The results reveal the importance of achieving a better integration of couple-specific psychosocial services in the service offer. Finally, the knowledge resulting from this study provides indications for the implementation of services better adapted to these couples’ needs.
Keywords:
- cancer,
- couple,
- needs,
- psychosocial intervention,
- service offer
Parties annexes
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