Résumés
Résumé
L’aide médicale à mourir (AMM) est légalement permise depuis 2015 au Québec et depuis 2016 ailleurs au Canada. Même dans les régions où la mort assistée est pratiquée depuis des décennies, peu d’attention a été portée aux personnes qui ont perdu un proche dans ces circonstances. On ne sait donc pas exactement quels effets peut avoir l’AMM sur le vécu du deuil des personnes concernées, et encore moins en situation de pandémie. À partir des données quantitatives et qualitatives du projet Covideuil, cet article entend éclairer plus précisément le vécu du deuil à la suite du décès par AMM d’un proche pendant la pandémie de COVID-19 au Canada. Il ressort de ces analyses que l’AMM ne semble pas être associée à une trajectoire de deuil distincte pendant la pandémie. Ce type de décès nécessite cependant que les intervenants sociosanitaires portent une attention particulière aux proches de la personne décédée, car leur accompagnement est moins systématisé que pour les soins palliatifs.
Mots-clés :
- Aide médicale à mourir,
- deuil,
- facteurs de risque et de protection,
- COVID-19
Abstract
Medical assistance in dying (MAiD) was legalized in Quebec in 2015 and elsewhere in Canada in 2016. Even in areas where assisted dying has been practiced for decades, little attention has been paid to those who have grieved for someone who died using MAiD. It is therefore unclear what effect MAiD may have on bereavement, especially in a pandemic situation. Using quantitative and qualitative data from the Covideuil project, this article aims to provide a clearer picture of the relationship between MAiD and bereavement among people faced with the death of someone during the COVID-19 pandemic in Canada. These analyses show that MAiD does not appear to be associated with grief during the pandemic. However, this specific type of death requires that social and health care workers pay particular attention to the deceased person’s family and friends, as their support is less systematic than for palliative care.
Keywords:
- Medical assistance in dying,
- bereavement,
- risk and protection factors,
- COVID-19
Parties annexes
Bibliographie
- Albrecht, H., Comartin, J., Valeriote, F., Block, K. et Scarpaleggia, F. (2011). Not to be forgotten. Care of vulnerable Canadians. Parliamentary Committee on Palliative and Compassionate Care. https://www.pallium.ca/wp-content/uploads/2019/07/Not-to-be-Forgotten-Care-of-Vulnerable-Canadians-2011.pdf
- Arcand, D. (2003). Les invasions barbares. Astral Films. 122 minutes.
- Bardin, L. (2013). L’analyse de contenu. Paris. PUF.
- Beuthin, R., Bruce, A., Thompson, M., Andersen, A. et Lundy, S. (2021). Experiences of grief-bereavement after a medically assisted death in Canada: Bringing death to life. Death studies, 1(10), 1982-1991. https://doi.org/10.1080/07481187.2021.1876790.
- Bianchini, V., Giusti, L., Salza, A., Cofini, V., Cifone, M. G., Casacchia, M., Fabiani, L. et Roncone, R. (2017). Moderate Depression Promotes Posttraumatic Growth (Ptg): A Young Population Survey 2 Years after the 2009 L’Aquila Earthquake. Clinical Practice & Epidemioly in Mental Health, 13, 10-19. https://doi.org/10.2174/1745017901713010010.
- Boelen, P. A. et Smid, G. E. (2017). The Traumatic Grief Inventory Self-Report Version (TGI-SR): Introduction and Preliminary Psychometric Evaluation. Journal of Loss and Trauma, 22(3), 196-212. https://doi.org/10.1080/15325024.2017.1284488.
- Breen, L. J., Kawashima, D., Joy, K., Cadell, S., Roth, D., Chow, A. et Macdonald, M. E. (2022). Grief literacy: A call to action for compassionate communities. Death studies, 46(2), 425-433. https://doi.org/10.1080/07481187.2020.1739780.
- Buchbinder, M., Ojo, E., Knio, L. et Brassfield, E. R. (2018). Caregivers’ Experiences With Medical Aid-In-Dying in Vermont: A Qualitative Study. Journal of pain and symptom management, 56(6), 936-943. https://doi.org/10.1016/j.jpainsymman.2018.08.010.
- Cadell, S. et Bosma, H. (2022). Palliative Social Work in Canada. Dans T. Altilio, S. Otis-Green et J. Cagle (dir.), Oxford Textbook of Palliative Social Work (2e éd., p. 482-484). Oxford University Press.
- Cadell, S. et Wright, D. K. (2019). Assisted dying. Dans D. Gu et M. E. Dupre (dir.), Encyclopedia of Gerontology and Population Aging (p. 1-4). Springer Reference. https://doi.org/10.1007/978-3-319-69892-2_1019-1.
- Cadell, S., Suarez, E. et Hemsworth, D. (2015). Reliability and Validity of a French Version of the Posttraumatic Growth Inventory. Open Journal of Medical Psychology, 4, 53-65. https://doi.org/10.4236/ojmp.2015.42006.
- Delespaux, E., Ryckebosch-Dayez, A. S., Heeren, A. et Zech, E. (2013). Attachment and Severity of Grief: The Mediating Role of Negative Appraisal and Inflexible Coping. Omega, 67, 269-289. https://doi.org/10.2190/OM.67.3.b.
- De Mont-Marin, F., Hardy, P., Lepine, J .P., Halflon, P. et al. (1993). Validation d’une version française de General Health Questionnaire (GHQ-28) dans une population de diabétiques. L’Encéphale, 19(4), 293-301.
- Dennis, B., Vanstone, M., Swinton, M., Brandt Vegas, D., Dionne, J. C., Cheung, A., Clarke, F. J., Hoad, N., Boyle, A., Huynh, J., Toledo, F., Soth, M., Neville, T. H., Fiest, K. et Cook, D. J. (2022). Sacrifice and solidarity: a qualitative study of family experiences of death and bereavement in critical care settings during the pandemic. BMJ open, 12(1). https://doi.org/10.1136/bmjopen-2021-058768.
- Des Aulniers, L. (2020). Le temps des mortels : espaces rituels et deuil. Boréal.
- Detsky, A. S. et Bogoch, I. I. (2020). COVID-19 in Canada: Experience and Response. JAMA, 324(8), 743-744. https://doi.org/10.1001/jama.2020.14033.
- Projet de loi n° 38, Loi modifiant la Loi concernant les soins de fin de vie et d’autres dispositions législatives. Éditeur officiel du Québec (2022).
- Frolic, A. N., Swinton, M., Murray, L. et Oliphant, A. (2020). Double-edged MAiD death family legacy: a qualitative descriptive study. BMJ supportive & palliative care. https://doi.org/10.1136/bmjspcare-2020-002648.
- Gladu, M. (2016). Marilyn Gladu introduces Bill C-277: An act providing for the development of a framework on palliative care in Canada. https://openparliament.ca/bills/42-1/C-277.
- Gamondi, C., Pott, M., Preston, N. et Payne, S. (2018). Family Caregivers’ Reflections on Experiences of Assisted Suicide in Switzerland: A Qualitative Interview Study. Journal of pain and symptom management, 55(4), 1085-1094. https://doi.org/10.1016/j.jpainsymman.2017.12.482.
- Goldberg, D. (1978). Manual of the general health questionnaire. Nfer Nelson.
- Goldberg, R., Nissim, R., An, E. et Hales, S. (2019). Impact of medical assistance in dying (MAiD) on family caregivers. BMJ supportive & palliative care, 11, 107-114.
- Hashemi, N., Amos, E., Lokuge, B., Holmes, S., Wiebe, E., Shaw, J., Nuhn, A., Just, A. et Kelly, M. (2021). Quality of Bereavement for Caregivers of Patients Who Died by Medical Assistance in Dying at Home and the Factors Impacting Their Experience: A Qualitative Study. Journal of Palliative Medecine, 24(9), 1351-1357. https://doi.org/10.1089/jpm.2020.0654.
- Holland, J. M., Currier, J. M. et Neimeyer, R. A. (2006). Meaning reconstruction in the first two years of bereavement: The role of sense-making and benefit-finding. Omega: Journal of Death and Dying, 53(3), 175-191. https://doi.org/10.2190/FKM2-YJTY-F9VV-9XWY.
- Holmes, S., Wiebe, E., Shaw, J., Nuhn, A., Just, A. et Kelly, M. (2018). Exploring the experience of supporting a loved one through a medically assisted death in Canada. Canadian family physician/Médecin de famille canadien, 64(9), 387-393.
- Institut national de santé publique (2022). Ligne du temps COVID-19 au Québec. https://www.inspq.qc.ca/covid-19/donnees/ligne-du-temps.
- Klass, D. et Steffen, E. M. (2017). Continuing bonds in bereavement. New Directions for Research and Practice. Routledge.
- Laperle, P., Achille, M. et Ummel, D. (2022). To Lose a Loved One by Medical Assistance in Dying or by Natural Death with Palliative Care: A Mixed Methods Comparison of Grief Experiences. Omega. Journal of Death en Dying, 0(0), 1-23. https://doi.org/10.1177/00302228221085191.
- Lee, S. A. et Neimeyer, R. A. (2022). Pandemic Grief Scale: A screening tool for dysfunctional grief due to a COVID-19 loss. Death Studies, 46(1), 14-24. https://doi.org/10.1080/07481187.2020.1853885.
- Lévesque, F. (2022, 24 mai). Aide médicale à mourir élargie. Un projet de loi déposé avant la fin de la session. La Presse. https://www.lapresse.ca/actualites/sante/2022-05-24/aide-medicale-a-mourir-elargie/un-projet-de-loi-depose-avant-la-fin-de-la-session.php.
- LaDonna, K. A., Taylor, T. et Lingard, L. (2018). Why open-ended survey questions are unlikely to support rigorous qualitative insights. Academic Medicine: Journal of the Association of American Medical Colleges, 93(3), 347-349. https://doi.org/10.1097/acm.0000000000002088.
- Paillé, P. et Muchielli, A. (2012). L’analyse qualitative en sciences humaines et sociales. Armand Colin.
- Srinivasan, E. G. (2019). Bereavement and the Oregon Death with Dignity Act: How does assisted death impact grief? Death Studies, 43(10), 647-655. https://doi.org/10.1080/07481187.2018.1511636.
- Sterling, M. (2011). General Health Questionnaire - 28 (GHQ-28). Journal of physiotherapy, 57(4), 259. https://doi.org/10.1016/S1836-9553(11)70060-1
- Statistique Canada (2021). Estimations des décès, par âge et sexe, annuelles. https://www150.statcan.gc.ca/t1/tbl1/fr/tv.action?pid=1710000601.
- Stroebe, W., Zech, E., Stroebe, M. S. et Abakoumkin, G. (2005). Does Social Support Help in Bereavement? Journal of Social and Clinical Psychology, 24(7), 1030-1050. https://doi.org/10.1521/JSCP.2005.24.7.1030.
- Tedeschi, R. G. et Calhoun, L. G. (1996). The Posttraumatic Growth Inventory: measuring the positive legacy of trauma. Journal of Traumatic Stress, 9(3), 455-471. https://doi.org/10.1007/bf02103658
- Vachon, M., Ummel, D., Lessard, É. et Guité-Verret, A. (2021, 1er avril). Le deuil pandémique, une nouvelle réalité. SpiritualitéSanté. https://www.chudequebec.ca/a-propos-de-nous/publications/revues-en-ligne/spiritualite-sante/dossiers/dossier%C2%A0-a-l-epreuve-de-la-pandemie/le-deuil-pandemique-une-nouvelle-realite.aspx
- Whitelaw, S., Lemmens, T. et Van Spall, H. G. (2022). The Expansion of Medical Assistance in Dying in the COVID-19 Pandemic Era and Beyond: Implications for Vulnerable Canadians. Can Journ Gen Int Med, 17(2), 17-21. https://doi.org/10.22374/cjgim.v17i2.586