Résumés
Résumé
Les bénéfices observés chez les adultes qui reçoivent un implant cochléaire montrent une importante variabilité, particulièrement chez les personnes qui présentent une surdité prélinguistique. Il existe toutefois très peu de connaissances sur l’expérience de l’implant cochléaire chez ce groupe de personnes et les recherches de nature qualitative qui explorent également le vécu des proches de ces personnes sont rares. Pour obtenir davantage de données sur ces deux situations, sept personnes sourdes porteuses d’un implant et six proches significatifs ont participé à des entrevues individuelles portant sur leur perception des bénéfices et des limites de l’implant cochléaire. Les témoignages recueillis permettent de découvrir l’expérience vécue par les personnes porteuses d’un implant et leurs proches, notamment en ce qui a trait à la découverte des sons environnementaux et aux relations familiales. Les résultats de cette étude exploratoire mettent de l’avant des bénéfices qui vont au-delà du gain auditif et qui permettent de mieux comprendre l’impact de cette technologie.
Mots-clés :
- Implant cochléaire,
- surdité prélinguistique,
- bénéfices,
- proches significatifs
Parties annexes
Bibliographie
- Bélanger, N. N., Baum, S. R., & Mayberry, R. I. (2012). Reading difficulties in adult deaf readers of French: Phonological codes, not guilty! Scientific Studies of Reading, 16(3), 263-285.
- Campbell, R., MacSweeney, M., & Woll, B. (2014). Cochlear implantation (CI) for prelingual deafness: The relevance of studies of brain organization and the role of first language acquisition in considering outcome success. Frontiers in Human Neuroscience, 8, 834.
- Chen, S., Karamy, B., Shipp, D., Nedzelski, J., Chen, J., & Lin, V. (2016). Assessment of the psychosocial impacts of cochlear implants on adult recipients and their partners. Cochlear Implants International, 17(2), 90-97.
- Craddock, L., Cooper, H., Riley, A., & Wright, T. (2016). Cochlear implants for pre-lingually profoundly deaf adults. Cochlear Implants International, 17(Suppl. 1), 26-30.
- Damen, G. W., Beynon, A. J., Krabbe, P. F., Mulder, J. J., & Mylanus, E. A. (2007). Cochlear implantation and quality of life in postlingually deaf adults: Long-term follow-up. Otolaryngology –Head and Neck Surgery, 136(4), 597-604.
- Duchesne, L., Millette, I., Bhérer, M., & Gobeil, S. (2017). Auditory performance and subjective benefits in adults with congenital or prelinguistic deafness who receive cochlear implants during adulthood. Cochlear Implants International, 18(3), 143-152.
- Eisenberg, L. S. (1982). Use of the cochlear implant by the prelingually deaf. The Annals of Otology, Rhinology and Laryngology, 91(2), 62-66.
- Gallagher, F. (2014). La recherche descriptive interprétative : description des besoins psychosociaux de femmes à la suite d’un résultat anormal à la mammographie de dépistage du cancer du sein. Dans M. Corbière & N. Larivière (Éds), Méthodes qualitatives, quantitatives et mixtes (pp. 5-28). Montréal : Presses de l’Université du Québec.
- Gaylor, J. M., Raman, G., Chung, M., Lee, J., Rao, M., Lau, J., & Poe, D. S. (2013). Cochlear implantation in adults: A systematic review and meta-analysis. JAMA Otolaryngology –Head and Neck Surgery, 139(3), 265-272.
- Gillespie, A., & Hald, J. (2017). The paradox of helping: Contradictory effects of scaffolding people with aphasia to communicate. PLoS One, 12(8), e0180708. doi: 10.1371/journal.pone.0180708
- Hallberg, L., & Ringdahl, A. (2004). Living with cochlear implants: Experiences of 17 adult patients in Sweden. International Journal of Audiology, 43,115-121.
- Hétu, R., Jones, L., & Getty, L. (1993). The impact of acquired hearing impairment on intimate relationships: Implications for rehabilitation. Audiology, 32(6), 363-380.
- Heydebrand, G., Mauze, E., Tye-Murray, N., Binzer, S., & Skinner, M. (2005). The efficacy of a structured group therapy intervention in improving communication and coping skills for adult cochlear implant recipients. International Journal of Audiology, 44(5), 272-280.
- Hinderink, J. B., Krabbe, P. F., & van den Broek, P. (2000). Development and application of a health-related quality-of-life instrument for adults with cochlear implants: The Nijmegen cochlear implant questionnaire. Otolaryngology–Head and Neck Surgery, 123(6), 756-765.
- Jeffs, E., Redfern, K., Stanfield, C., Starczewski, H., Stone, S., Twomey, T., & Fortnum, H. (2015). A pilot study to explore the experiences of congenitally or early profoundly deafened candidates who receive cochlear implants as adults. Cochlear Implants International, 16(6), 312-320.
- Kaplan, D. M., Shipp, D. B., Chen, J. M., Ng, A. H., & Nedzelski, J. M. (2003). Early-deafened adult cochlear implant users: Assessment of outcomes. Journal of Otolaryngology, 32(4), 245-249.
- Kennedy, V., Stephens, D., & Fitzmaurice, P. (2008). The impact of cochlear implants from the perspective of significant others of adults cochlear implant users. Otology and Neurotology,29(5), 607-614.
- Klop, W. M. C., Briaire, J. J., Stiggelbout, A. M., & Frijns, J. H. (2007). Cochlear implant outcomes and quality of life in adults with prelingual deafness. The Laryngoscope, 117(11), 1982-1987.
- Knutson, J. F., & Lansing, C. R. (1990). The relationship between communication problems and psychological difficulties in persons with profound acquired hearing loss. Journal of Speech and Hearing Disorders, 55(4), 656-664.
- Manchaiah, V., & Danermark, B. (2017). The experience of hearing loss. Journey through aural rehabilitation. London: Routledge.
- Middlebrooks, J. C., Bierer, J. A., & Snyder, R. L. (2005). Cochlear implants: The view from the brain. Current Opinion in Neurobiology, 15(4), 488-493.
- Millette, I., Gobeil, S., Bhérer, M., & Duchesne, L. (2011). Cochlear implants in adults with prelinguistic deafness: Do auditory gains match the subjective benefits? Cochlear Implants International, 12(Suppl. 1), S78-S81.
- Mistry, D., Ryan, J., Maessen, H., & Bance, M. (2014). Differences in perception of hearing handicap between cochlear implant users and their spouses. The Laryngoscope, 124(5), 1199-1203.
- Moody-Antonio, S., Takayanagi, S., Masuda, A., Auer Jr, E. T., Fisher, L., & Bernstein, L. E. (2005). Improved speech perception in adult congenitally deafened cochlear implant recipients. Otology and Neurotology, 26(4), 649-654.
- Most, T., Shrem, H., & Duvdevani, I. (2010). Cochlear implantation in late-implanted adults with prelingual deafness. American Journal of Otolaryngology, 31(6), 418-423.
- Newman, C. W., & Weinstein, B. E. (1986). Judgments of perceived hearing handicap by hearing-impaired elderly men and their spouses. Journal of the Academy of Rehabilitative Audiology, 19, 109-115.
- Office des personnes handicapées du Québec (2009). À part entière : pour un véritable exercice du droit à l’égalité. Politique gouvernementale pour accroître la participation sociale des personnes handicapées. Québec : Gouvernement du Québec.
- Peasgood, A., Brookes, N., & Graham, J. (2003). Performance and benefits as outcome measures following cochlear implantation in non-traditional adult candidates: A pilot study. Cochlear Implants International, 4(4), 171-190.
- Preminger, J. E., & Meeks, S. (2010). The influence of mood on the perception of hearing-loss related quality of life in people with hearing loss and their significant others. International Journal of Audiology, 49(4), 263-271.
- Raman, G., Lee, J., Chung, M., Gaylor, J. M., Sen, S., Rao, M., ... Neault, M. W. (2011). Effectiveness of cochlear implants in adults with sensorineural hearing loss. Rockville, MD: Agency for Healthcare Research and Quality. Repéré à https://www.ncbi.nlm.nih.gov/books/NBK285766/
- Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing and Health, 23(4), 334-340.
- Schramm, D., Fitzpatrick, E., & Séguin, C. (2002). Cochlear implantation for adolescents and adults with prelinguistic deafness. Otology and Neurotology, 23(5), 698-703.
- Simmons-Mackie, N., & Damico, J. S. (2008). Exposed and embedded corrections in aphasia therapy: Issues of voice and identity. International Journal of Language and Communication Disorders, 43(Suppl. 1), 5-17.
- Sladen, D. P., Peterson, A., Schmitt, M., Olund, A., Teece, K., Dowling, B., ... Neff, B. A. (2017). Health-related quality of life outcomes following adult cochlear implantation: A prospective cohort study. Cochlear Implants International, 18(3), 130-135.
- Stephens, D., France, L., & Lormore, K. (1995). Effects of hearing impairment on the patient’s family and friends. Acta Oto-laryngologica, 115(2), 165-167.
- Stephens, D., Ringdahl, A., & Fitzmaurice, P. (2008). Reported benefits and shortcomings of cochlear implantation by patients and their significant others. Cochlear Implants International, 9(4), 186-198.
- Straatman, L. V., Huinck, W. J., Langereis, M. C., Snik, A. F., & Mulder, J. J. (2014). Cochlear implantation in late-implanted prelingually deafened adults: Changes in quality of life. Otology and Neurotology, 35(2), 253-259.
- Teoh, S. W., Pisoni, D. B., & Miyamoto, R. T. (2004a). Cochlear implantation in adults with prelingual deafness. (Part I). Clinical results. The Laryngoscope, 114(9), 1536-1540.
- Teoh, S. W., Pisoni, D. B., & Miyamoto, R. T. (2004b). Cochlear implantation in adults with prelingual deafness. (Part II). Underlying constraints that affect audiological outcomes. The Laryngoscope,114(10), 1714-1719.
- Välimaa, T. T., Sorri, M. J., & Löppönen, H. J. (2001). Speech perception and functional benefit after multichannel cochlear implantation. Scandinavian Audiology, 30(1), 45-47.
- van Dijkhuizen, J. N., Boermans, P. B., Briaire, J. J., & Frijns, J. H. (2016). Intelligibility of the patient’s speech predicts the likelihood of cochlear implant success in prelingually deaf adults. Ear and Hearing 37(5), e302-e310.
- Watson, S., Balko, K. A., Comer, L. K., Bishop, R. D., Reilley, D., & Backous, D. D. (2003). Benefits of cochlear implantation in prelingual adult users: Oral and manual communicators. Cochlear Implants International, 4(Suppl. 1), 75-76.
- Wong, P. C. (2007). Changes in speech production in an early deafened adult with a cochlear implant. International Journal of Language and Communication Disorders, 42(4), 387-405.
- Zwolan, T. A., Kileny, P. R., & Telian, S. A. (1996). Self-report of cochlear implant use and satisfaction by prelingually deafened adults. Ear and Hearing, 17(3), 198-210.