Résumés
Abstract
Canada has historically relied on a system of ad hoc committees for ethical guidance on public health and science policy, unlike the more centralized approach of more than 140 countries worldwide. Here, drawing on interviews with leaders across the country, we offer a perspective on the imperative and a strategy for a coordinated, Bioethics Council for Canada structured to ensure proactive thinking, provide rapid responses, and engage the public on urgent bioethics matters concerning the health and well-being of Canadians.
Keywords:
- bioethics,
- health policy,
- national bioethics council
Résumé
Le Canada s’est historiquement appuyé sur un système de comités ad hoc pour l’orientation éthique de la santé publique et de la politique scientifique, contrairement à l’approche plus centralisée de plus de 140 pays dans le monde. En s’appuyant sur des entretiens avec des responsables de tout le pays, nous proposons ici une perspective sur l’impératif et une stratégie pour un Conseil de bioéthique coordonné pour le Canada, structuré pour assurer une réflexion proactive, fournir des réponses rapides et engager le public sur des questions urgentes de bioéthique concernant la santé et le bien-être des Canadiens.
Mots-clés :
- bioéthique,
- politique de santé,
- conseil national de bioéthique
Parties annexes
Bibliography
- 1. Baudouin JL, Ouellette M, Molinari A. Toward a Canadian advisory council on biomedical ethics. Ottawa: Law Reform Commission of Canada; 1990.
- 2. Köhler J, Reis AA, Saxena A. A survey of national ethics and bioethics committees. Bull World Health Organ. 2021;99(2):138-47.
- 3. Illes J, Knoppers B, Meslin EM, et al. Canadian ethicists recognize the critical importance of science and research. The Conversation. 2021 Jun 30.
- 4. Illes J, Schaffrick M, Ravitsky V, et al. Re-invigorating notions of a bioethics council for Canada in a new era of biomedicine. In: Patrao Neves M, editor. The Kaleidoscope of Global Bioethics. Conselho Nacional de Ética para as Ciências da Vida; 2023. p. 95-102.
- 5. Advisory Panel on the Federal Research Support System. Report of the advisory panel on the federal research support system. Ottawa: Innovation, Science and Economic Development Canada; 2023.
- 6. Council of Canadian Academies. Navigating collaborative futures: Expert panel on international science, technology, innovation, and knowledge partnerships. Council of Canadian Academies. 2024 Feb 14.
- 7. Hummel P, Adam T, Reis A, Littler K. Taking stock of the availability and functions of national ethics committees worldwide. BMC Med Ethics. 2021;22:56.
- 8. Kiger ME, Varpio L. Thematic analysis of qualitative data: AMEE Guide No. 131. Med Teach. 2020;42(8):846-54.
- 9. Fram SM. The Constant Comparative Analysis Method outside of grounded theory. Qual Report. 2015;18(1):1-25.
- 10. Gupta J, Morelli A, Johansen TG. How to protect people while preserving resources. Sci Am. 2024 Mar 1.
- 11. Murphy K, Di Ruggiero E, Upshur R, et al. Artificial intelligence for good health: A scoping review of the ethics literature. BMC Med Ethics. 2021;22:14.
- 12. Government of Canada. Engagement forum on Canada’s role in the development of an international pandemic instrument. Public Health Agency of Canada; 2023.
- 13. United Nations Educational, Scientific and Cultural Organization. National bioethics committees in action: Lessons learned. Paris: UNESCO; 2010.
- 14. Racine E. Do we – and should we – have a Canadian bioethics? Can J Bioeth. 2020;3(3):1-10.