Résumés
Abstract
Although Canada recently expanded access to medical assistance in dying, intolerably suffering Canadians with dementia still face seven obstacles to qualify for MAID. Advance directives for VSED are an important, yet under-appreciated, alternative.
Keywords:
- VSED,
- voluntarily stopping eating and drinking,
- MAID,
- medical aid in dying,
- dementia directive,
- Alzheimer’s disease,
- Ulysses clause
Résumé
Bien que le Canada ait récemment élargi l’accès à l’aide médicale à mourir, les Canadiens atteints de démence qui souffrent intolérablement doivent encore faire face à sept obstacles pour être admissibles à l’AMM. Les directives anticipées pour le AVMB constituent une alternative importante, mais sous-estimée.
Mots-clés :
- AVMB,
- arrêt volontaire de manger et de boire,
- AMM,
- aide médicale à mourir,
- directive sur la démence,
- maladie d’Alzheimer,
- clause d’Ulysse
Parties annexes
Bibliography
- 1. Parliament of Canada. Bill C-14. First Session, Forty-second Parliament, 64-65 Elizabeth II, 2015-2016.
- 2. Parliament of Canada. Bill C-7. Second Session, Forty-third Parliament, 69-70 Elizabeth II, 2020-2021.
- 3. Quill TE, Menzel PT, Pope TM, Schwarz JK. Voluntarily Stopping Eating and Drinking: A Compassionate, Widely Available Option for Hastening Death. Oxford: Oxford University Press; 2021.
- 4. Alzheimer’s Association. Alzheimer’s and Dementia in Canada. Chicago, IL; 2021.
- 5. Statistics Canada.
- 6. Volicer L, Pope TM, Steinberg KE. Assistance with eating and drinking only when requested can prevent living with advanced dementia. Journal of the American Medical Directors Association. 2019;20(11):1353-1355.
- 7. Brewer C. O, Let Me Not Get Alzheimer’s, Sweet Heaven: Why Many People Prefer Death or Active Deliverance to Living with Dementia. Bloxham, UK: Skyscraper Publications Ltd.; 2019.
- 8. Ryan D. Dead at noon: Gillian Bennett’s last wish was to get people talking about a taboo topic. Vancouver Sun. 19 August 2014.
- 9. Bennett G. Dead at Noon Blog. 17 August 2014.
- 10. Posno R. Ron Posno’s Dementia: A Personal Odyssey.
- 11. Grant K. From dementia to medically assisted death: a Canadian woman’s journey, and the dilemma of the doctors who helped. Globe and Mail. 12 October 2019.
- 12. Health Canada. Second Annual Report on Medical Assistance in Dying in Canada 2020. June 2021.
- 13. CAMAP. Medical Assistance in Dying (MAiD) in Dementia.
- 14. B.C. man is one of the first Canadians with dementia to die with medical assistance. CBC Radio. 29 October 2019.
- 15. College of Physicians and Surgeons of British Columbia. Letter of Decision in File No. 2018-0034. 6 December 2018.
- 16. Johnson SH. Regulating physician behavior: taking doctors’ ‘bad law’ claims seriously. Saint Louis University Law Journal. 2009;53:973-1032.
- 17. Canadian Civil Liberties Association. Medical Assistance in Dying (Former Bill C-14). 11 April 2018.
- 18. British Columbia Civil Liberties Association. BCCLA reacts: New MAID legislation a mixed bag for patients’ rights and compassionate care. 4 March 2020.
- 19. Dobec S. Webinar summary: dementia, MAID, and other end-of-life options. Dying with Dignity. 7 April 2021.
- 20. Downie J. Medical assistance in dying bill an important step forward for canadians with dementia. Policy Options. 27 October 2020.
- 21. Downie J, Green S. For people with dementia, changes in MAiD law offer new hope. Policy Options. 21 April 2021.
- 22. Reisberg B, Ferris SH, de Leon MJ, Crook T. The global deterioration scale for assessment of primary degenerative dementia. American Journal of Psychiatry. 1982;139:1136-1139.
- 23. Senate of Canada. Senator’s Statements. 10 February 2021.
- 24. Patil A. Halifax woman posthumously calls for fix to Canada’s assisted dying rules. CBC News. 6 February 2019.
- 25. Bentley v. Maplewood Seniors Care Society, 2014 BCSC 165.
- 26. Regionaal Tuchtcollege Voor De Gezondheidszorg Amsterdam. Judgment No. 2020/064. 17 August 2020.
- 27. Byram AC, Wiebe ER,Trembley-Huet S, Reiner PB. Advance requests for MAID in dementia: policy recommendations emerging from a mixed-methods study of the views of the Canadian public and MAID practitioners. medRxiv. 4 April 2021.
- 28. Nakanishi A, Cuthbertson L, Chase J. Advance requests for medical assistance in dying in dementia: a survey study of dementia care specialists. Canadian Geriatrics Journal. 2021;24(2):82-95.
- 29. Canadian Press Staff. Quebec consultations begin on expanding medical assistance in dying. CTV News. 14 May 2021.
- 30. Trejo-Gabriel-Galán JM. Euthanasia and assisted suicide in neurological diseases: a systematic review, neurology. Neurologia. Online 3 June 2021.
- 31. Dalhousie University Health Law Institute. VSED and VSPeC. End-of-Life Law & Policy in Canada.
- 32. Downie J. An alternative to medical assistance in dying? the legal status of voluntary stopping eating and drinking (VSED). Canadian Journal of Bioethics/Revue Canadienne de Bioéthique. 2018;1(2):48-58.
- 33. Mader S, Apold V. VSED as an alternative to MAiD: a pan-Canadian legal analysis. Available at SSRN. 7 December 2019.
- 34. Parliament of Canada. Special Joint Committee on Medical Assistance in Dying.
- 35. Gina Bravo G, Van den Block L, Downie J, Arcand M, Trottier L. Attitudes toward withholding antibiotics from people with dementia lacking decisional capacity: findings from a survey of Canadian stakeholders. BMC Medical Ethics. 2021;22:119.
- 36. Thorpe L. Assessing patients with dementia for MAID. Death with Dignity Canada, Toronto Chapter. 25 August 2021.
- 37. British Columbia Ministry of Health. Medical Assistance in Dying Waiver of Final Consent Form.
- 38. Hagens M, Pasman HRW, van der Heide A, Onwuteaka-Philipsen BD. Intentionally ending one’s own life in the presence or absence of a medical condition: a nationwide mortality follow-back study. SSM Population Health. 2021;15:100871.
- 39. Pope TM. Whether, when and how to honor advance VSED requests for end-stage dementia patients. American Journal of Bioethics. 2019;19(1):90-92.
- 40. Pope TM. Prospective autonomy and dementia: Ulysses contracts for VSED. Journal of Bioethical Inquiry. 2015; 12(3):389-394.
10.7202/1058267ar