Abstracts
Résumé
La stigmatisation est un enjeu d’actualité pour les personnes autistes. Cependant, le manque d’instruments disponibles en français pour mesurer les défis liés à la stigmatisation est un frein à la recherche dans ce domaine. Pour remédier à ce problème, nous avons traduits trois outils afin de (a) mesurer les attitudes explicites, les connaissances et l’ouverture envers l’autisme dans une population francophone, (b) examiner l’influence de variables sociodémographiques sur ces mesures et (c) évaluer les éventuelles associations entre ces trois construits. Nous avons recruté 53 participants d’une communauté cégepienne qui ont répondu à trois questionnaires : le Societal Attitudes Towards Autism, l’Autism Spectrum Knowledge Scale– General Population, et l’Openness to Autism Scale. Les scores obtenus par les participants à chaque questionnaire étaient similaires à ceux rapportés dans des populations anglophones. De plus, les participants qui connaissaient une personne autiste ont obtenu des scores plus élevés sur l’échelle de connaissances. Les analyses ont également révélé une corrélation modérée entre les échelles évaluant les attitudes explicites et l’ouverture, suggérant que ces deux questionnaires mesuraient des construits similaires. Bien que des analyses plus approfondies des propriétés psychométriques soient nécessaires pour évaluer pleinement la pertinence de ces échelles traduites, elles semblent prometteuses pour examiner les effets des programmes de sensibilisation à l’autisme dans une population francophone.
Mots-clés :
- autisme,
- attitudes explicites,
- connaissances,
- ouverture,
- stigmatisation
Abstract
Stigmatization is a topical issue for autistic people. However, the lack of instruments to measure the challenges associated with stigmatization available in French is a barrier to research on the topic. To address this issue, we translated three tools to (a) measure explicit attitudes, knowledge, and openness toward autism in a French-speaking population, (b) examine the influence of sociodemographic variables on these measures, and (c) assess potential relations between these three constructs. We recruited 53 participants from a pre-university college who responded to three questionnaires: the Societal Attitudes Towards Autism, the Autism Spectrum Knowledge Scale – General Population, and the Openness to Autism Scale. The scores of the participants on each questionnaire were similar to those reported in English-speaking populations. Furthermore, the participants who knew an autistic person showed higher scores on the knowledge scale. The analyses also uncovered a moderate correlation between the scales measuring explicit attitudes and openness, suggesting that these two questionnaires were measuring some similar constructs. Although more in-depth analyses of the psychometric properties are necessary to fully investigate the relevance of the translated scales, they seem promising to examine the effects of programs to raise awareness about autism in a French-speaking population.
Keywords:
- autism,
- explicit attitudes,
- knowledge,
- openness,
- stigmatization
Appendices
Bibliographie
- Allport, F. H. (1954). The structuring of events: Outline of a general theory with applications to psychology. Psychological Review, 61(5), 281-303. https://doi.org/10.1037/h0062678
- Arikan, K. (2005). A stigmatizating attitude towards psychiatric illnesses is associated with narcissistic personality traits. Israel Journal of Psychiatry and Related Sciences, 42(4), 248-250.
- Bakare, M. O., Tunde-Ayinmode, M. F., Adewuya, A. O., Bello-Mojeed, M. A., Sale, S., James, B. O., Yunusa, M. A., Obindo, J. T., Igwe, M. N., Odinka, P. C., Oshodi, Y. O., Okonoda, K. M., Unir, K. M et Orovwigho, A. O. (2015) Recognition of autism spectrum disorder (ASD) symptoms and knowledge about some other aspects of ASD among final year medical students in Nigeria, Sub-Saharan Africa. BMC Research Notes, 8(1), 454-462. https://doi.org/10.1186/s13104-015-1433-0
- Baron-Cohen, S., Bolton, P., Wheelwright, S., Scahill, V., Short, L., Mead, G. et Smith, A. (1998). Does autism occur more often in families of physicists, engineers, and mathematicians? Autism, 2(3), 296-301. https://doi.org/10.1177/1362361398023008
- Baron-Cohen, S., Wheelwright, S., Skinner, R., Martin, J. et Clubley, E. (2001). The autism-spectrum quotient (AQ): Evidence from Asperger syndrome/high-functioning autism, males and females, scientists and mathematicians. Journal of Autism and Developmental Disorders, 31(1), 5-17. https://doi.org/10.1023/a:1005653411471
- Bauer, N. S., Carroll, A. E., Saha, C., & Downs, S. M. (2015) Computer decision support changes physician practice but not knowledge regarding autism spectrum disorders. Applied Clinical Informatics, 6(3), 454-465. https://doi.org/10.4338/ACI-2014-09-RA-0084
- Botha, M. et Frost, D. M. (2020). Extending the minority stress model to understand mental health problems experienced by the autistic population. Society and Mental Health, 10(1), 20-34. https://doi.org/10.1177/2156869318804297
- Brien-Bérard, M. et des Rivières-Pigeon, C. (2020). Comprendre les défis conjugaux des parents d’enfants ayant un TSA : proposition d’un modèle écosystémique. Revue Québécoise de Psychologie, 41(3), 131-156. https://doi.org/10.7202/1075468ar
- Broady, T. R., Stoyles, G. J. et Morse, C. (2017). Understanding carers’ lived experience of stigma: The voice of families with a child on the autism spectrum. Health & Social Care in the Community, 25(1), 224-233. https://doi.org/10.1111/hsc.12297
- Bury, S. M., Haschek, A., Wenzel, M., Spoor, J. R. et Hedley, D. (2022). Brief report: Learning about autism: Is the source of autism knowledge associated with differences in autism knowledge, autism identity, and experiences of stigma. Journal of Autism and Developmental Disorders. Advance online publication. https://doi.org/10.1007/s10803-022-05823-5
- Cangas, A. J., Navarro, N., Parra, J., Ojeda, J. J., Cangas, D., Piedra, J. A. et Gallego, J. (2017). Stigma-stop: A serious game against the stigma toward mental health in educational settings. Frontiers in Psychology, 8, 1385. https://doi.org/10.3389/fpsyg.2017.01385
- Chou, W. J., Wang, P. W., Hsiao, R. C., Hu, H. F. et Yen, C. F. (2020). Role of school bullying involvement in depression, anxiety, suicidality, and low self-esteem among adolescents with high-functioning autism spectrum disorder. Frontiers in Psychiatry, 11. https://doi.org/10.3389/fpsyt.2020.00009
- Clair, M., Daniel, C. et Lamont, M. (2016). Destigmatization and health: Cultural constructions and the long-term reduction of stigma. Social Science & Medicine, 165, 223-232. https://doi.org/10.1016/j.socscimed.2016.03.021
- Cooper, R. et Kennady, C. (2021). Autistic voices from the workplace. Advances in Autism, 7(1), 73-85. https://doi.org/10.1108/AIA-09-2019-0031
- Cook, A., Ogden, J. et Winstone, N. (2020). The effect of school exposure and personal contact on attitudes towards bullying and autism in schools: A cohort study with a control group. Autism, 24(8), 2178-2189. https://doi.org/10.1177/1362361320937088
- Dachez, J., Ndobo, A. et Ameline, A. (2015). French validation of the multidimensional attitude scale toward persons with disabilities (MAS): The case of attitudes toward autism and their moderating factors. Journal of Autism and Developmental Disorders, 45(8), 2508-2518. https://doi.org/10.1007/s10803-015-2417-6
- des Rivières-Pigeon, C. et Courcy, I. (2014). Autisme et TSA: Quelles réalités pour les parents au Québec?: Santé et bien-être des parents d’enfant ayant un trouble dans le spectre de l’autisme au Québec. Presses de l’Université du Québec.
- Eagly, A. H. et Chaiken, S. (1993). The psychology of attitudes. Harcourt Brace Jovanovich College Publishers.
- Ekehammar, B. et Akrami, N. (2007). Personality and prejudice: From big five personality factors to facets. Journal of Personality, 75(5), 899-926. https://doi.org/10.1111/j.1467-6494.2007.00460.x
- Findler, L., Vilchinsky, N. et Werner, S. (2007). The Multidimensional Attitudes Scale toward persons with disabilities (MAS): Construction and validation. Rehabilitation Counseling Bulletin, 50(3), 166-176. https://doi.org/10.1177/00343552070500030401
- Flood, L.N., Bulgrin, A. and Morgan, B.L. (2013). Piecing together the puzzle: Development of the societal attitudes towards autism (SATA) scale. Journal of Research in Special Educational Needs, 13(2), 121-128. https://doi.org/10.1111/j.1471-3802.2011.01224.x
- Gaddis, S. M., Ramirez, D. et Hernandez, E. L. (2018). Contextualizing public stigma: Endorsed mental health treatment stigma on college and university campuses. Social Science & Medicine, 197, 183-191. https://doi.org/10.1016/j.socscimed.2017.11.029
- Gillespie-Lynch, K., Daou, N., Obeid, R., Reardon, S., Khan, S. et Goldknopf, E. J. (2021). What contributes to stigma towards autistic university students and students with other diagnoses?. Journal of Autism and Developmental Disorders, 51(2), 459-475. https://doi.org/10.1007/s10803-020-04556-7
- Gillespie-Lynch, K., Brooks, P. J., Someki, F., Obeid, R., Shane-Simpson, C., Kapp, S. K., Daou, N. et Smith, D. S. (2015). Changing college students’ conceptions of autism: An online training to increase knowledge and decrease stigma. Journal of Autism and Developmental Disorders, 45(8), 2553-2566. https://doi.org/10.1007/s10803-015-2422-9
- Green, S. E. (2003). “What do you mean ‘what’s wrong with her?’”: Stigma and the lives of families of children with disabilities. Social Science & Medicine, 57(8), 1361-1374. https://doi.org/10.1016/S0277-9536(02)00511-7
- Guillemin, F., Bombardier, C. et Beaton, D. (1993). Cross-cultural adaptation of health-related quality of life measures: Literature review and proposed guidelines. Journal of Clinical Epidemiology, 46(12), 1417-1432. https://doi.org/10.1016/0895-4356(93)90142-N
- Haney, J. L. et Cullen, J. A. (2018). An exploratory investigation of social workers’ knowledge and attitudes about autism. Social Work in Mental Health, 16(2), 201-222. https://doi.org/10.1080/15332985.2017.1373265
- Harrison, A. J., Slane, M. M., Hoang, L. et Campbell, J. M. (2017). An international review of autism knowledge assessment measures. Autism, 21(3), 262-275. https://doi.org/10.1177/1362361316638786
- Harnum, M., Duffy, J. et Ferguson, D. A. (2007). Adults’ versus children’s perceptions of a child with autism or attention deficit hyperactivity disorder. Journal of Autism and Developmental Disorders, 37(7), 1337-1343. https://doi.org/10.1007/s10803-006-0273-0
- Hebron J. S., Humphrey N. (2012). Mental health difficulties among young people with autistic spectrum disorders in mainstream secondary schools: A comparative study. Journal of Research in Special Educational Needs, 14(1), 22-32. https://doi.org/10.1111/j.1471-3802.2012.01246.x
- John, O. P. et Srivastava, S. (1999). The Big five trait taxonomy: History, measurement, and theoretical perspectives. In L. A. Pervin et O. P. John (Eds.), Handbook of personality: Theory and research (pp. 102-138). Guilford Press.
- Johnson, T. D. et Joshi, A. (2016). Dark clouds or silver linings? A stigma threat perspective on the implications of an autism diagnosis for workplace well-being. Journal of Applied Psychology, 101(3), 430-449. https://doi.org/10.1037/apl0000058
- Jones, S. C., Akram, M., Gordon, C. S., Murphy, N. et Sharkie, F. (2021). Autism in Australia: Community knowledge and autistic people’s experiences. Journal of Autism and Developmental Disorders, 51(10), 3677-3689. https://doi.org/10.1007/s10803-020-04819-3
- Jones, D. R., DeBrabander, K. M. et Sasson, N. J. (2021). Effects of autism acceptance training on explicit and implicit biases toward autism. Autism, 25(5), 1246-1261. https://doi.org/10.1177/1362361320984896
- Klarić, M. et Lovrić, S. (2017). Methods to fight mental illness stigma. Psychiatria Danubina, 29(S5), S910-S917.
- Kokosh, J. (1976). Psychology of scientist: XXXIV. MMPI characteristics of physical and social science students: Replication and reanalysis. Psychological Reports, 39(3), 1067-1071. https://doi.org/10.2466/pr0.1976.39.3f.1067
- Koniou, I., Douard, E., & Lanovaz, M. J. (2023). Brief report: Virtual reality to raise awareness about autism. Journal of Autism and Developmental Disorders. Advance online publication. https://doi.org/10.1007/s10803-023-06216-y
- Kuhn, J. C. et Carter, A. S. (2006). Maternal self-efficacy and associated parenting cognitions among mothers of children with autism. American Journal of Orthopsychiatry, 76(4), 564-575. https://doi.org/10.1037/0002-9432.76.4.564
- Lanovaz, M. J., Dufour, M. M. et Shah, S. (2015). Newspaper coverage of autism treatment in Canada: 10-year trends (2004–2013). The Canadian Journal of Psychiatry, 60(7), 329-333. https://doi.org/10.1177/070674371506000706
- Low, H. M., Lee, L. W. et Che Ahmad, A. (2020). Knowledge and attitudes of special education teachers towards the inclusion of students with autism spectrum disorder. International Journal of Disability, Development and Education, 67(5), 497-514. https://doi.org/10.1080/1034912X.2019.1626005
- Ludlow, A., Skelly, C. et Rohleder, P. (2012). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17(5), 702-711. https://doi.org/10.1177/1359105311422955
- Lum, M., Garnett, M. et O’Connor, E. (2014). Health communication: A pilot study comparing perceptions of women with and without high functioning autism spectrum disorder. Research in Autism Spectrum Disorders, 8(12), 1713-1721. https://doi.org/10.1016/j.rasd.2014.09.009
- Maiano, C., Normand, C. L., Salvas, M. C., Moullec, G. et Aimé, A. (2016). Prevalence of school bullying among youth with autism spectrum disorders: A systematic review and meta-analysis. Autism Research, 9(6), 601-615. https://doi.org/10.1002/aur.1568
- Matsumoto, D. et Yoo, S. H. (2006). Toward a new generation of cross-cultural research. Perspectives on Psychological Science, 1(3), 234-250. https://doi.org/10.1111/j.1745-6916.2006.00014.x
- May, C. (2012). An investigation of attitude change in inclusive college classes including young adults with an intellectual disability. Journal of Policy and Practice in Intellectual Disabilities, 9(4), 240-246. https://doi.org/10.1111/jppi.12013
- McClain, M. B., Harris, B., Schwartz, S. E., Benallie, K. J., Golson, M. E. et Benney, C. M. (2019). Brief report: Development and validation of the autism spectrum knowledge scale general population version: Preliminary analyses. Journal of Autism and Developmental Disorders, 49(7), 3007-3015. https://doi.org/10.1007/s10803-019-04019-8
- McCrae, R. R. (1996). Social consequences of experiential openness. Psychological Bulletin, 120(3), 323-337. https://doi.org/10.1037/0033-2909.120.3.323
- Mothersill, D., Loughnane, G., Grasso, G. et Hargreaves, A. (2023). Knowledge, attitudes, and behaviours towards schizophrenia, bipolar disorder, and autism: A pilot study. Irish Journal of Psychological Medicine, 40(4), 634-640. https://doi.org/10.1017/ipm.2021.81
- Nevill, R. A. et White, S. W. (2011). College students’ openness toward autism spectrum disorders: Improving peer acceptance. Journal of Autism and Developmental Disorders, 41(12), 1619-1628. https://doi.org/10.1007/s10803-011-1189-x
- Nicolaidis, C., Raymaker, D. M., Ashkenazy, E., McDonald, K. E., Dern, S., Baggs, A. E., Kapp, S. K., Weiner, M. et Boisclair, W. C. (2015). “Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum. Autism, 19(7), 824-831. https://doi.org/10.1177/1362361315576221
- Obeid, R., Daou, N., DeNigris, D., Shane-Simpson, C., Brooks, P. J. et Gillespie-Lynch, K. (2015). A cross-cultural comparison of knowledge and stigma associated with autism spectrum disorder among college students in Lebanon and the United States. Journal of Autism and Developmental Disorders, 45(11), 3520-3536. https://doi.org/10.1007/s10803-015-2499-1
- Pelleboer-Gunnink, H. A., Van Weeghel, J. et Embregts, P. J. (2021). Public stigmatisation of people with intellectual disabilities: A mixed-method population survey into stereotypes and their relationship with familiarity and discrimination. Disability and Rehabilitation, 43(4), 489-497. https://doi.org/10.1080/09638288.2019.1630678
- Sasson, N. J., Faso, D. J., Nugent, J., Lovell, S., Kennedy, D. P. et Grossman, R. B. (2017). Neurotypical peers are less willing to interact with those with autism based on thin slice judgments. Scientific Reports, 7, 40700. https://doi.org/10.1038/srep40700
- Segall, M. J. et Campbell, J. M. (2014). Factors influencing the educational placement of students with autism spectrum disorders. Research in Autism Spectrum Disorders, 8(1), 31-43. https://doi.org/10.1016/j.rasd.2013.10.006
- Sénéchal, C. et des Rivières-Pigeon, C. (2009). Impact de l’autisme sur la vie des parents. Santé Mentale au Québec, 34(1), 245-260. https://doi.org/10.7202/029772ar
- Sperber, A. D., Devellis, R. F. et Boehlecke, B. (1994). Cross-cultural translation: Methodology and validation. Journal of Cross-Cultural Psychology, 25(4), 501-524. https://doi.org/10.1177/0022022194254006
- Someki, F., Torii, M., Brooks, P. J., Koeda, T. et Gillespie-Lynch, K. (2018). Stigma associated with autism among college students in Japan and the United States: An online training study. Research in Developmental Disabilities, 76, 88- 98. https://doi.org/10.1016/j.ridd.2018.02.016
- Stone, W. L. (1987). Cross disciplinary perspectives on autism. Journal of Pediatric Psychology, 12(6), 615-630. https://doi.org/10.1093/jpepsy/12.4.615
- Sugrim, G. (2021). Hiring candidates with autism spectrum disorder (ASD): Effects of diagnostic disclosure and presence of ASD behaviors on employability ratings [Honor’s thesis, City University of New York, Baruch College]. CUNY Academic Works.
- Swiezy, N. A. (2007). Autism Knowledge Questionnaire – Revised. Christian Sarkine Autism Treatment Center, HANDS in Autism.
- Thornicroft, G., Rose, D. et Kassam, A. (2007). Discrimination in health care against people with mental illness. International Review of Psychiatry, 19(2), 113-122. https://doi.org/10.1080/09540260701278937
- Thornicroft, G., Mehta, N., Clement, S., Evans-Lacko, S., Doherty, M., Rose, D., Koschorke, M., Shidhaye, R., O’Reilly, C. et Henderson, C. (2016). Evidence for effective interventions to reduce mental-health-related stigma and discrimination. The Lancet, 387(10023), 1123-1132. https://doi.org/10.1016/S0140-6736(15)00298-6
- Thorsteinsson, E. B., Draper, A. et Lykins, A. D. (2020). To vaccinate or not: The relative impact of attitudes toward autism spectrum disorders and the ability to interpret scientific information on vaccination decisions. International Journal of Environmental Research and Public Health, 17(7), 2542. https://doi.org/10.3390/ijerph17072542
- Van Hees, V., Moyson, T. et Roeyers, H. (2015). Higher education experiences of students with autism spectrum disorder: Challenges, benefits and support needs. Journal of Autism and Developmental Disorders, 45(6), 1673-1688. https://doi.org/10.1007/s10803-014-2324-2
- van der Kluit, M. J. et Goossens, P. J. (2011). Factors influencing attitudes of nurses in general health care toward patients with comorbid mental illness: An integrative literature review. Issues in Mental Health Nursing, 32(8), 519-527. https://doi.org/10.3109/01612840.2011.571360
- Wallace, S., Fein, D., Rosanoff, M., Dawson, G., Hossain, S., Brennan, L., Como, A. et Shih, A. (2012). A global public health strategy for autism spectrum disorders. Autism Research, 5(3), 211-217. https://doi.org/10.1002/aur.1236
- Weeks, A., Swerissen, H. et Belfrage, J. (2007). Issues, challenges, and solutions in translating study instruments. Evaluation Review, 31(2), 153-165. https://doi.org/10.1177/0193841X06294184
- Werner, S. et Shulman, C. (2013). Subjective well-being among family caregivers of individuals with developmental disabilities: The role of affiliate stigma and psychosocial moderating variables. Research in Developmental Disabilities, 34(11), 4103-4114. https://doi.org/10.1016/j.ridd.2013.08.029
- Woodgate, R. L., Ateah, C. et Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative Health Research, 18(8), 1075-1083. https://doi.org/10.1177/1049732308320112