Abstracts
Abstract
Introduction: The implications of the COVID-19 pandemic are far reaching for persons living with dementia (PLWD) in the community and in long-term care (LTC), as they are among the most vulnerable. PLWD are at risk for severe COVID-19 and a disruption in accessing supportive and health care due to the confinement measures. Objectives: 1) To measure the impact of the pandemic on health and social services use, mortality, COVID-19 infection where possible of PLWD both in the community and in LTC facilities compared to before the pandemic; 2) To understand PLWDs’ and care partners’ perceived needs, behaviours related to health service use and the experiences of PLWD, care partners, and physicians with health and social services; 3) To generate and disseminate evidence-based and actionable recommendations on effective strategies to address the current pandemic and prepare for subsequent waves. Methods: A convergent mixed-methods design with a participatory approach in 4 Canadian provinces. Objective 1 will use a retrospective observational cohort design to examine administrative health data. Outcomes will include mortality (all-cause; COVID-19 related), health service use and, where possible, infection rates. Objective 2 will use an explanatory multiple case study, with surveys and semi-structured interviews to explore the experiences of PLWD and care partners using health and social services and the role of sociodemographic factors. The third, knowledge translation objective will integrate these results using a deliberative dialogue with key stakeholders (decision-makers, healthcare managers, PLWD, care partners, and clinicians) to develop and disseminate evidence-based recommendations for practice and policy. Impact and conclusion: This project will provide an understanding of the impact of the COVID-19 pandemic on PLWD and care partners in Canada and highlight areas for improvement.
Keywords:
- dementia,
- health and social services use,
- COVID-19,
- mixed-methods study,
- protocol
Résumé
Introduction : La pandémie de COVID-19 a eu de graves conséquences pour les personnes qui présentent des vulnérabilités, particulièrement celles avec un trouble neurocognitif majeur (TNM). Ces dernières risquent à la fois d’avoir une infection grave et de voir leur accès aux soins de santé et services sociaux compromis. Objectifs : Décrire le protocole de notre étude qui vise à : 1) Mesurer l’impact de la pandémie sur l’utilisation des services de santé et des services sociaux, la mortalité, l’infection à la COVID-19 des personnes avec un TNM, lorsque possible, à la fois dans la communauté et dans les établissements de soins de longue durée, comparativement à avant la pandémie, 2) Comprendre les besoins perçus et les comportements relatifs à l’utilisation des services de santé des personnes avec un TNM et des proches aidants, et les expériences des personnes avec un TNM, proches aidants et médecins avec les services de santé et sociaux, et 3) Générer et diffuser des recommandations fondées sur des données probantes portant sur des stratégies efficaces pour faire face à la pandémie actuelle et se préparer aux vagues subséquentes. Méthodes : Une étude à méthodes mixtes convergentes avec approche participative réalisée dans 4 provinces canadiennes. Objectif 1 : nous ferons une étude de cohorte observationnelle rétrospective dans laquelle nous mesurerons la mortalité (toutes causes ; liées à COVID-19), l’utilisation des services de santé, et les taux d’infection dans des banques de données administratives. Objectif 2 : nous ferons une étude de cas multiple explicative, dans laquelle nous conduirons des entretiens semi-structurés et des questionnaires auprès des personnes avec TNM, proches aidants et des cliniciens. Objectif 3 : nous intégrerons les résultats des 2 premiers objectifs à l’aide d’une méta-matrice et conduirons un dialogue délibératif avec des décideurs, gestionnaires, personnes avec TNM, proches aidants et, cliniciens. Impact et conclusion : Ce projet permettra de comprendre l’impact de la pandémie sur les personnes avec TNM et proches aidants canadiens et de souligner les domaines à améliorer.
Mots-clés :
- troubles neurocognitifs majeurs,
- utilisation des services de santé et des services sociaux,
- COVID-19,
- méthodes mixtes,
- protocole
Appendices
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