Abstracts
Abstract
Context. Public engagement efforts in health policy have posed many value-laden questions, yet those that appreciate the complexity and diversity of the concept of health equity are rare. We introduce the Fairness Dialogues, a new method for deliberating health equity among the general public. We provide its theoretical underpinning and present its empirical illustration and qualitative assessment. Methods. Primarily informed by the scholarship of deliberation, we designed the Fairness Dialogues, featured by reason-giving and inclusive group deliberation using a hypothetical scenario (the town of Troutville) that presents carefully designed, simple, open-ended cases focusing on a chosen equity and fairness issue. To assess whether the Fairness Dialogues encourages reflective views, we conducted a qualitative investigation by focusing on fairness and unfairness of inequalities in life expectancy. Findings. Our results revealed the complex intuitions that people have and their curiosity, patience, and willingness to scrutinize them in-depth through a small group dialogue. Intuitions shared by our study participants are similar to those presented in the scholarly philosophical literature. Conclusions. The Fairness Dialogues is a promising method to incorporate the public’s views into policy-making involving value judgment and to develop the capacity of the public to discuss value-laden questions in a reflective and inclusive manner.
Keywords:
- health inequality,
- health equity,
- deliberation,
- public engagement,
- values
Résumé
Contexte. Les efforts d’engagement du public en politique de santé ont posé de nombreuses questions chargées de valeur, mais celles qui tiennent compte de la complexité et de la diversité du concept d’équité en matière de santé sont rares. Nous présentons les Fairness Dialogues, une nouvelle méthode pour débattre de l’équité en matière de santé auprès du grand public. Nous en fournissons les fondements théoriques et en présentons l’illustration empirique et l’évaluation qualitative. Méthodes. Principalement inspirés par l’érudition de la délibération, nous avons conçu les Fairness Dialogues, caractérisés par une délibération de groupe objective et inclusive utilisant un scénario hypothétique (la ville de Troutville) qui présente des cas soigneusement conçus, simples, ouverts et axés sur une question d’équité et de justice. Pour évaluer si les Fairness Dialogues encouragent la réflexion, nous avons mené une enquête qualitative en nous concentrant sur l’équité et l’iniquité des inégalités en matière d’espérance de vie. Résultats. Nos résultats ont révélé les intuitions complexes des gens et leur curiosité, leur patience et leur volonté de les examiner en profondeur dans le cadre d’un dialogue en petit groupe. Les intuitions partagées par les participants à notre étude sont similaires à celles présentées dans la littérature philosophique académique. Conclusions. Les Fairness Dialogues sont une méthode prometteuse pour intégrer les points de vue du public dans l’élaboration de politiques impliquant un jugement de valeur et pour développer la capacité du public à discuter de questions chargées de valeurs de manière réfléchie et inclusive.
Mots-clés :
- inégalité de santé,
- équité en santé,
- délibération,
- engagement public,
- valeurs
Appendices
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